So today has gone pretty well for us, not so well for our friends. We left at 9:30 this morning and arrived in KC at 12:30. They had room for us at the Ronald McDonald house so we checked in and unloaded the car and had lunch prior to Immanuel's pre-admission testing appointment at Children's Mercy Hospital at 2:00 p.m. There we met Granny & Grandpa. Granny tried to cry the minute she saw the baby but I quickly told her that wasn't allowed. They took Isaiah and Isaac to play and eat (they never get enough it seems) while daddy and I took Immanuel in for his tests, which was so nice because we didn't have to worry about them and could focus on our little guy. All went well during vitals, sats, and what not. We met with a cath lab nurse, Jessica, and then an anesthesiologist. Afterwards we signed into the Ronald McDonald family room at CMH so that it's done before tomorrow.
Then I got a text from our heart friend, Melissa, who was simultaneously at CMH for Maccoy's monthly cardiology appointment saying that all wasn't going as planned and he needed a second echo. My heart dropped. As I waited to hear from her my other friend, Amy, who has been my BFF since childhood and who was also on her way from Wichita to be part of "Team Immanuel" today and tomorrow called. She'd actually called once before but it was when we were checking in so I couldn't get to my phone. Come to find out she'd stopped on her way up as instructed to do by her OB/GYN (she's expecting in April) and started having problems and was then taken by ambulance to Olathe Medical! Heart is really sinking now. Fortunately she and the baby are fine but she was admitted and is staying overnight. Her husband and father-in-law were coming immediately to be with her. Sigh....
Meanwhile we went back to RMH with my parents to unwind a bit. I got an awesome surprise from my parents - they gave me this fantastic mini-laptop thing (obviously I'm not technically advanced as I'm sure it has a name) that's about the size of my purse and I'm loving it! We played games, did some arts and crafts projects, and had a pretty good time. Then we went to dinner at RMH and my parents left to go out to eat with my mom's brother and his wife. Then I find out that Maccoy is going to need surgery in 2-6 weeks rather than late May or early June as we'd though. Wow.
Oh, and just a side note, my other girlfriend that is watching out dog texted to say our hot water heater was leaking water when she went over to feed the dog but thank God for her she shut the water off, cleaned it up, and we'll deal with that later. So, overall a pretty good day for us but I feel bad for our friends....I mean, really, really bad.
Now things are winding down. Shock and I got a little upset with each other over a shirt, which I know is just both of us being on edge, nervous and upset about tomorrow and yet we're not really talking about it. We did apologize, kiss and make up and gave long hugs so that helps a lot. I've layed out things for tomorrow, packed the hospital & diaper bags, and have the alarms set. The baby is sleeping peacefully and I just want to be next to him, listening to him breathe, watching his chest rise, smelling his hair, and gazing into his sweet face. Isaac is also asleep as I type. Daddy and Isaiah went downstairs to the RMH family room to watch some game on the big screen.
It all seems rather surreal right now. I know tomorrow is huge. We're getting so many prayers is amazing. And it must be simply by the grace of God that I'm not a total wreck. I just know he has us in his arms, that he has a plan for Immanuel and for our family, and that everything will be fine, according to his will. I find comfort in that faith and my Lord, my God. I praise His name for bringing me to this point. I know I couldn't have handled this a few years back and yet here I am, going through it now, at a time when I couldn't be more better equipped for this in our marriage, in our family, mentally, emotionally, and spiritually. Our God IS an awesome God!!! I'll close on that. Much love to all those many, many family, friends, supporters, the networks and those that are simply keeping us in prayer tonight that don't even know us....Father, bless them as we keep them in our prayers as well...Amen.
Mission to Space
5 years ago
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